YOUR RIGHTS ARE OUR PRIORITY
November 6, 2022 CIAAG Celebrates our 5 year anniversary!
November 3, 2022: Issued the Press Release: "CIAAG Effects International Policy Guidance with UNODC" issued." CIAAG Founder, Lauren Deluca, served as a Subject Matter Expert and provided recommendations regarding the use of Public-Private-Partnerships within nations. The UNODC issued a "Digital Roadmap" based on these meetings which included a number of CIAAG's recommendations, including but not limited to, the need to "regulate the evidence-base." This is the first document of it's kind and sets a roadmap for countries seeking to engage Public-Private-Partnerships programs within their country. CIAAG is honored to serve on this committee and provide a voice for the citizens in which these policies ultimately impact.
October 22, 2022: Correspondence sent to Senator's Chuck Grassley, Senator Ron Johnson, Senator Roger Marshall MD and, Senator Marsha Blackburn sharing our concerns regarding the clinical intramural and extramural clinical trials being funded at National Institutes of Health (NIH), Agency Healthcare Research & Quality (AHRQ), the Veterans Association (VA) and the Patient-Centered Outcomes Research Institute (PCORI).
September 21, 2022: CIAAG, Founder, Lauren Deluca's article was featured in Patient's Rising Blog, providing guidance to patients on: "What to do when your doctor no longer wishes to provide you with pain support?"
April 13, 2022 Arizona Senate Bill 1162 was signed into law by Governor Ducey. SB1162 amended section 32-3248-1, exempting individuals with chronic pain from dose limitations on opioid-based pain medications. CIAAG is proud to have been a part of this process and would like to thank Barby Ingle from the iPain Foundation for her leadership in this effort.
April 5, 2022 CIAAG Founder, Lauren Deluca, joined Jay from Daily Remedy Podcast to discuss the layers of bureaucracy within federal organizations like the CDC and FDA, and reveal how those layers allow for undue corporate influence and counterintuitive policies. Listen in for this eye-opening discussion!
March 31, 2022 CIAAG Founder, Lauren Deluca, was interviewed by KOAA News5, Southern Colorado, discussing the pros and cons of healthcare applications in the nation: Health management apps increase in popularity, here's what to know before downloading one
March 13, 2022 PRESS RELEASE: The CIAAG Analysis of the 2022 Opioid Prescribing Guidelines (draft revision) was published for immediate release.
February 26, 2022 CIAAG joined the International Service for Human Rights in promoting their campaign addressing concerns surrounding the election process for the upcoming vote for the 19 Member seats at the United Nation's Committee on NGO elections. Click here to see CIAAG's PRESS RELEASE.
February 14, 2022 CIAAG participated in the Disabled not Defeated Campaign with coalition partner Adrenal Alternatives.
February 11, 2022 CIAAG joined Free2Care's campaign to gather public comment regarding the Department of Health and Services proposed rule change to the Safe Harbor that allows GPOs to conduct business with kickbacks. This change will eliminate the ability 0f GPOs to hide behind the Safe Harbor and will increase quality healthcare access and choice, lower costs, and increase competition and innovation in the hospital supply chain.
February 10, 2022 CIAAG endorsed an open letter to the Member's of the United Nations General Assembly regarding the ECOSOC Committee on NGO's addressing a rapidly growing trend where decisions seem to be made for political reasons rather than on the merit of the application, and where the vast majority of applications are 'deferred' year after year.
February 3, 2022 CIAAG collaborated with Teen Pain Connect from Bangkok, Thailand on Project Purple; to raise awareness for teenagers who are affected by/suffering from chronic pain.
January 31, 2022 CIAAG joined 31 organizations in a joint letter to the Biden Administration requesting Transparency in Clinical Trials being funded by the Federal grant dollars and conducted by private academic institutions and pharmaceutical companies.
January 26, 2022 CIAAG Founder, Lauren Deluca, provided testimony for Arizona State Legislation, SB1162 - Amending Section 32-3248-1, exempting individuals with chronic pain from dose limitations on opioid-based pain medications. Press Release enclosed.
December 8, 2021 CIAAG Founder, Lauren Deluca, was a featured guest on "Close Up Radio" with host, Doug Llewelyn, where she shared her personal journey into healthcare, the Founding of CIAAG, and the driving forces of the inhumane pain care taking place in America.
November 17, 2021 CIAAG published their exclusive report, Ethical Guidance in Public Private Partnerships: Gaps, Inconsistencies & Recommendations which outlines the primary issues and recommendations to address the negative outcomes from the US Public-Private Partnership initiatives in healthcare.
November 11, 2021 CIAAG Founder, Lauren Deluca, joined the iPain Conference where she presented a CIAAG Exclusive, "The National Pain Strategy: Is It Working."
October 26, 2021 CIAAG Founder, Lauren Deluca, was recognized by the International Society of Female Professionals for her work advocating for patient rights.
September 9, 2021 CIAAG joined the United Nations Office of Drugs and Crime Civil Society Unit via the UN Convention Against Transnational Organized Crime (UNTOC) & the UN Convention Against Corruption (UNCAC)
July 16, 2021 CIAAG remitted formal comments to the CDC Board of Scientific Counselors for the National Center for Injury Prevention and Control regarding their initial "Observations of the Opioid Workgroup" for the 2016 CDC Guideline for Prescribing Opioids.
June 30, 2021 CIAAG Founder, joined Your Freedom Hub: "War on Pain Patients" to present the National Pain Strategy: Is It Working? A CIAAG exclusive analysis of the historical steps surrounding the creation of the National Pain Strategy and its related programs and their impact on society since being implemented. You can see the recording here.
May 6, 2021 CIAAG submitted an Appropriations Request to the House Subcommittee on Labor, Health & Human Services, and Education asking for monies to be allocated to the creation of an Oversight Committee and to fund impact studies to determine the social and health implications on the recent healthcare changes on the public health and well-being.
May 2, 2021 CIAAG Founder, Lauren Deluca, was featured on Fox News, Boston commenting on the study: One in Five People Suffer from Chronic Pain: The Debate Continues on the Proper Role of Opioid Analgesics
May 2, 2021 CIAAG presented to the Chapman Spoonie's at Champman University where she shared CIAAG's Founding story, current research findings, and our Organizational goals to help advocate for people to receive individualized health care, free from discrimination and bias.
March 15, 2021 CIAAG partners with Adrenal Alternatives on a joint campaign to advocate for disabled patients to have a right to caregivers during the COVID pandemic.
February 23-24, 2021 CIAAG joined the International Publication Planning Meeting in presenting, "The Pursuit of Public Health & How to Build Trust in the Industry" and "Understanding the Powerful Impact of Trusted Voices".
February 7, 2021 CIAAG President, Lauren Deluca, joined the "Patient Advocacy Show" with Academia and students from Touro University to discuss the new rule from HHS rule in the 2021 CPT manual regarding guidelines for office and outpatient Evaluation and Management (E/M) Services.
February 1, 2021 CIAAG President, Lauren Deluca and Vice President, Shasta Rayne Harner both endorse "Open Letter to the Acting Director, Agency of Healthcare Research and Quality" authored by Subject Matter Expert in Public Policy, Richard A. Lawhern, PhD, advising that a formal complaint was submitted to the House of Representatives Committee on Government Oversight and Reform, on grounds of fraud and abuse in regards to the validity or lack thereof for methods applied in Comparative Outcomes Review 240.
December 10, 2020: CIAAG sends a copy of "Addressing the Tri-Crisis" to the Biden/Harris Administration. In this document, we outline goals and recommendations that we would like to see the administration take within the first 100 days of office.
October 21, 2020: CIAAG President Lauren Deluca addressed the United Nations at the 3rd Intersessional Meeting of the 63rd United Nations Commission on Narcotic Drugs in Vienna, Austria.
September 24, 2020: CIAAG shared the results of an Academic study, Capturing Well-being While Immunocompromised, which they helped facilitate as Community Partners with the University of Pennsylvania, to help show the impact of COVID-19 on individuals living with auto-immune diseases.
September 10, 2020: CIAAG issued a press release announcing that we joined the United Nations VNGOC on Narcotic Drugs.
August 29, 2020: CIAAG issued a press release for their exclusive research report, "A Crisis Exploited," which explores the professional and financial ties of high-powered individuals, Academia, Advocacy Organizations, Pharmaceutical Organizations, and Data Analytic Companies concerning the pain studies being conducted/funded by grant monies at the National Institutes of Health.
June 25, 2020: CIAAG joined 72 organizations endorsing a joint proposal for equitable access to treatments, vaccines, and diagnostics, resulting from the ACT-Accelerator.
June 15, 2020: CIAAG Vice President, Shasta Rayne Harner was featured on The Rapp Report where she and show host, Branden Rapp discuss Violation of a Nation.
May 14, 2020: CIAAG sent a joint letter to CMS requesting communication with the states to permit 90 day supply of schedule II medications during the COVID19 pandemic.
May 4, 2020: CIAAG joined 58 organizations endorsing a joint letter urging to accelerate the development, availability, and, equitable access to safe, quality, effective and affordable diagnostics, therapeutics, and vaccines against coronavirus.
April 26, 2020: CIAAG Vice-President, Shasta Rayne Harner was featured in Pharmacist Steve's blog, Shasta Rayne calls out the bureaucrats on their calculated war on patients.
April 10, 2020: CIAAG endorsed a joint letter, COVID-19: Principles for Global Access, Innovation and Cooperation, promoting access for all, solidarity, and global cooperation toward the common goal of treatment and vaccinations to address the global health pandemic we are facing as a result of the COVID-19 outbreak.
February 25 - 26, 2020: CIAAG Vice-President, Shasta Rayne Harner, joined The International Publication Planning Meeting to discuss patient advocacy with clinical researchers from around the globe. Her presentation, Words Matter, focused on research and its direct implications on medical care, treatments, and the overall care a patient receives, and how researchers to take care with the language they use in their work.
November 19, 2019: Our team met with a Massachusetts State Representatives' office to discuss the current state of public health policy and the negative consequences of our lawmakers relying on unqualified individuals to advise on healthcare policy and pain management.
November 11, 2019: CIAAG Members joined in our "Call to Action" to email lawmakers in all 50 states sharing our concerns regarding unqualified individuals, with personal bias and agendas, to be advising our lawmakers on healthcare policy and public health changes. Our members sent emails to every single lawmaker in their home state along with a copy of a recent publication, "Damaging State Legislation Regarding Opioids: The Need To Scrutinize Sources Of Inaccurate Information Provided To Lawmakers" which outlines this very issue.
October 18, 2019: CIAAG Founder, Lauren Deluca, addressed the United Nations at the 6th Intersessional Meeting of the 62nd United Nations Commission of Narcotic Drugs in Vienna, Austria. CIAAG highlighted the need for balance in the US strategy on combating the illicit drug crisis. Focusing in particular on how the regulatory approach to combat the crisis is negatively impacting patient care and public health/safety.
September 8, 2019: CIAAG Vice President, Shasta Harner, joined host Giazilla Rawrr on Blunt Force where they discuss living with rare disorders and daily, debilitating pain, and what it feels like to have our dignity, ability to function, and quality of life stolen from us due to regulatory/policy changes.
July 15, 2019: CIAAG joined 151 organizations, associations, and institutions in endorsing the position statement: "Decision by the World Health Organization (WHO) to Withdraw Guidance Documents" – A Global Palliative Care Initiative.
June 17, 2019: Our team met with the Massachusetts Department of Health & Human Services, Chief of Staff to discuss our CIAAG's work in the local community as well as activities being undertaken at the state level that may hurt patient care and access to life-sustaining opioid analgesics.
June 13, 2019: CIAAG launched their video blog "World of Pain" where hosts Lauren Deluca & Shasta Rayne Harner educate the community on all things chronic pain and the news.
June 9 - 11, 2019: Our team joined the "International Conference on Opioids"
June 8, 2019: CIAAG was featured in the RSDSA Summer Newsletter discussing the founding of CIAAG, our trip to the United Nations, the State Leadership Program, and more!
May 28, 2019: CIAAG joined 50 Organizations in an open letter to the Delegates at the 72nd World Health Assembly on Transparency Resolution Negotiations.
May 15, 2019: CIAAG Founder, Lauren Deluca, joins Matt Connarton’s UNLEASHED 95.4 WMNH - Manchester NH, where they get real about America’s pain crisis and the illegal clinical trial running through our healthcare system.
April 28, 2019: CIAAG Founder, Lauren Deluca, joined Michael Finney of ABC7 KGO News Team on Consumer News. They discuss the 2016 Centers for Disease Control & Prevention’s controversial Opioid Prescribing Guidelines and their devastating impact on consumer access to safe medical treatment.
April 24, 2019: CIAAG issued a Press Release: “CDC renounces harmful opioid guidelines.”
April 24, 2019: CIAAG Founder, Lauren Deluca, was featured in USA Today: “Feds issue new warning to doctors: Don’t skimp too much on opioid pain pills”
April 24, 2019: Centers for Disease Control & Prevention issued a statement “CDC Advises Against Misapplication of the Guideline for Prescription Opioids for Chronic Pain.”
April 21, 2019 to April 23, 2019: Our team joined the 2019 Rx Drug Abuse & Heroin Summit. (More info forthcoming about this event)
April 9, 2019: Department of Justice issued a Press Release: Indivior, Inc., Indicted for Fraudulently Marketing Prescription Opioid
April 9, 2019: Food & Drug Administration issued a Press Release: FDA identified harm reported from sudden discontinuation of opioid pain medicines and requires label changes to guide prescribers on gradual, individualized tapering
April 8, 2019 to April 9, 2019: Our team traveled to Washington, D.C. to meet with various Congressional and Senatorial Committee Leaders to discuss our findings in "Violation of a Nation" and request a safety announcement against forced tapering.
March 27, 2019: CIAAG Director of Research, was featured in PennLive: Opioid epidemic’s other victims: Patient in pain who can’t find relief where he shared his story of struggling with accessing management services for his co-morbid chronic illnesses.
March 13, 2019: Our team met with Senator Kamala Harris's staff to begin conversations about CIAAG’s work and the untreated pain crisis in America. We shared concerns regarding potential financial incentives motivating public health changes as well as the direct impact it's having on the patient population.
March 7, 2019: CIAAG Founder, Lauren Deluca, joined BATV’s Janine Zagel on “Foundations of Change” where they discussed the current state of affairs for people living with chronic illness.
February 12, 2019: Our team met with Kansas Governor Laura Kelly, Chief of Staff, to discuss the untreated pain crisis in America. We discussed the impact the current regulations are having on healthcare services and patients across the nation. The governor's office has no Opioid Task Force in place nor one planned as their primary substance of abuse is methamphetamine. The governor’s office is keenly aware of how the new federal regulations are impeding patient care.
February 5, 2019: Our team met with Massachusetts Representatives regarding Senate Bill 1001, An Act relative to removing barriers to non-opioid pain management, and Senate Bill 332 An Act strengthening prescription drug safety and drug stewardship.
January 23, 2019: Our team met with Michigan Congress Members to discuss our Organizations work for the chronically ill and disabled. We discussed how the current approach to the Opioid Epidemic is now creating a crisis of untreated pain leading to increases in patient abandonment, abuse, and a drastic rise in suicides in America.
January 22, 2019: CIAAG joined 70 Organizations in a Joint-Letter to Congress expressing our concerns regarding provisions included in the proposed NAFTA 2.0 (referred to by the Trump Administration as the United States-Mexico-Canada Agreement); which would entrench and expand prescription drug monopoly protections, thwart competition and undermine efforts to expand access to affordable medicines.
January 22, 2019: CIAAG joined 19 Organizations in a Joint-Letter to House health care leaders urging their support Medicare negotiate prices, stop Monopoly abuses and make drug manufacturers and pharmacy benefit managers transparent.
January 21, 2019: Our team met with Oregon Senator Ron Wyden's Health Staff to discuss his correspondence to Secretary Alex Azar where the HHS Inter-Agency Task Force for Pain is being questioned by his office regarding transparency and in particular, his office's concerns regarding the Task Force’s focus on the damaged caused by CDC Guidelines.
January 5, 2019: CIAAG was featured in Tears of Truth, which highlighted the recent news coverage by Fox News as well as our Organizations participating in the 61st Commission on Narcotic Drugs, at the United Nations headquarters in Vienna, Austria.
December 20. 2018: CIAAG Founder, Lauren Deluca, was featured in several publications including, Hampshire Gazette, MetroWest Daily News, Lowell Sun, Sentinel & Enterprise, Milford News, Boston Business Journal & Boston University News: State Rep. pushes opioid tax bill in ongoing fight against crisis in Massachusetts
December 12. 2018: CIAAG Founder, Lauren Deluca, was featured in Fox News: Health experts offer solutions for the unintended consequences of opioid crackdown
November 26, 2018: CIAAG Founder, Lauren Deluca, was featured in The Fix: The Other Side of the Opioid Epidemic: Chronic Pain Patients
October 29, 2018: CIAAG has joined 45 Organizations urging Congressional leaders calling on them to reject any measures that would increase drug costs for consumers, including rolling back the provisions in the Bipartisan Budget Act of 2018.
September 22, 2018: CIAAG Founder, Lauren Deluca, Op-Ed was featured in Times Union: “Chronic Pain Requires Access to Medication”
September 21, 2018: CIAAG Founder, Lauren Deluca, hosted a booth at the “Abilities Expo” in Boston, Massachusetts.
August 28, 2018: CIAAG Founder, Lauren Deluca, was featured in Politico: “How the Opioid Crackdown is Backfiring”
July 20, 2018: CIAAG Founder, Lauren Deluca, was featured in Part 3 of a three-part series by The Social Exchange “Where the Story Meets Pain” by host Zach Rhoads.
July 3, 2018: CIAAG Founder, Lauren Deluca, was featured in USA Today, “Chronic Pain Patients, overlooked in opioid crisis, getting new attention from the top at FDA”
June 27 - June 29, 2018: Our team joined the “Affordable Medicines Now” Conference Hosted by Public Citizen.
June 26, 2018: CIAAG Founder, Lauren Deluca, was featured in the National Pain Report “FDA Hearing Draw Chronic Pain Community - Now What”
June 26, 2018: CIAAG Founder, Lauren Deluca, met with Senator Claire McCaskill’s health care staff to discuss the untreated pain crisis in America as well as Senator McCaskill’s introduction of Senate Bill 3000 “Pain Advocacy Transparency Act”
June 15, 2018: We introduced “Words of Pain” a blog run by the chronic pain community, in hopes of enlightening the public about the realities of chronic illness pain.
June 7, 2018: Chronic Illness Advocacy & Awareness Group joined 45 Organizations in a Joint Letter to the Honorable Charles E. Grassley and the Honorable Dianne Feinstein in their role as Chairman and Ranking Member of the “Committee on Judiciary” in support of the “CREATES Act." The Creates Act is a bipartisan, market-based reform that will speed the introduction of generic medications to help restore the balance between innovation and affordability of medications.
May 25, 2018: Worcester Speaks Out - with Host Matt Taylor
May 8, 2018: Barbara & You – America’s longest-running public access talk show (41 years).
May 6, 2018: Foundations of Change: Episode 2 - with host Janine Zagel
April 11, 2018: CIAAG founder Lauren Deluca was featured as a guest expert during an interview with “AlphaAdvocates” Lauren lead a LIVE educational seminar to over 40 start-up healthcare organizations, educating them on the facts verse fiction in the face of changing regulations in our healthcare. In addition, she presented various ways other Non-Profit Organizations, as well as patient advocates, can effectively advocate for themselves and the community they serve.
April 2, 2018: Our team joined and attended the 2018 National RX Drug Abuse & Heroin Summit.
March 30, 2018: CIAAG Founder, Lauren Deluca, was a featured guest on “The Jordan Levy Show”
February 6, 2018: Foundations of Change: Episode 1 with host Janine Zagel
February 1, 2018: CIAAG Founder, Lauren Deluca, was featured in a Prevention Magazine article: “The Other Opioid Crisis” by Peter Moore.
January 16, 2018: CIAAG Founder, Lauren Deluca, testified at the Massachusetts Statehouse regarding House Bill 4033 – “An Act Relative to Combating Addiction, Accessing Treatment, Reducing Prescriptions and Enhancing Prevention”
January 15, 2018: CIAAG joined over 60 organizations and independent groups urging the U.S. Senate to reject Alex Azar as Secretary of Health & Human Services. Azar has a record of driving up domestic prescription drug prices which would negatively impact our community.
December 19, 2017: Founder, Lauren Deluca, testified at the Massachusetts Statehouse regarding House Bill 1181 & Senate Bill 1183 – “An Act Relative to Pain Assessment & Management in a Healthcare Facility”
December 4, 2017: CIAAG joined over 40 organizations working collaboratively in Washington, D.C. on grassroots efforts to promote universal health care and a single-payer healthcare system, as well as price caps on prescription drugs, palliative care, and legal protections for chronic illness/pain and disabled patient access to pain management.
November 6, 2017: Chronic Illness Advocacy & Awareness Group dba CIAAG was Founded.